Aicardi Goutieres Syndrome Advocacy Association
Non-profit Organizations • 
Crested Butte, Colorado, United States • 1-10 Employees
Company overview
| Headquarters | Crested Butte, Colorado, United States |
| Website | |
| NAICS | 813 |
| Keywords | Patient Advocacy, Rare Disease, Leukodystrophy, Aicardi Goutieres Syndrome |
| Employees | 1-10 |
| Socials |
Key Contacts at Aicardi Goutieres Syndrome Advocacy Association
Devon Cordova
Executive Director
Edie Crosse
Scientific Director
Aicardi Goutieres Syndrome Advocacy Association Email Formats
Aicardi Goutieres Syndrome Advocacy Association uses 2 email formats. The most common is {first initial}.{last name} (e.g., j.doe@agsaa.org), used 50% of the time.
| Format | Example | Percentage |
|---|---|---|
{first initial}.{last name} | j.doe@agsaa.org | 50% |
{first name}.{last name} | john.doe@agsaa.org | 50% |
About Aicardi Goutieres Syndrome Advocacy Association
The Aicardi Goutieres Syndrome Advocacy Association works to improve the lives of individuals and families living with Aicardi-Goutieres Syndrome (AGS). AGSAA is a global coalition of deeply dedicated parent advocates working alongside clinicians, researchers, and scientists. We are united in our desire to improve the lives of individuals and families living with and yet to be diagnosed with Aicardi-Goutières Syndrome using our learned experience and honoring those before us. 💙 AGSAA is a 501c nonprofit foundation Our Mission: Rescuing Potential. Everything we do reflects a sense of urgency to rescue patient potential and preserve quality of life. We’re focused on accelerating research and providing timely emotional outreach and educational support alongside evolving clinical care recommendations to affected families. 💚 Socials: @agsadvocacy on all platforms 💚 Listen to our podcast: https://anchor.fm/agsadvocacy/ #aicardigoutieressyndrome #disabilitiesawareness #raredisease
Aicardi Goutieres Syndrome Advocacy Association revenue & valuation
| Annual revenue | $513,330 |
| Revenue per employee | $86,000 |
| Estimated valuation?This valuation is estimated based on industry average for the Non-profit Organizations industry and current estimated revenues | $1,700,000 |
| Total funding | No funding |
Employees by Management Level
Total employees: 1-10
Seniority
Employees
Funding Data
Aicardi Goutieres Syndrome Advocacy Association has never raised funding before.
Aicardi Goutieres Syndrome Advocacy Association Tech Stack
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