Alport Syndrome Foundation
Non-profit Organizations • 
Scottsdale, Arizona, United States • 11-20 Employees
Company overview
| Headquarters | P.O. Box 4130, Scottsdale, Arizona 85261, US |
| Phone number | +14808003510 |
| Website | |
| NAICS | 813 |
| Keywords | Professional Education, Kidney Disease, Hearing Loss, Research Funding, Clinical Practice Guidelines, Patient Education And Advocacy, Rare Disease, Kidney Health, Support Community, Genetic Disease, Alport Syndrome Awareness |
| Founded | 2007 |
| Employees | 11-20 |
| Socials |
Key Contacts at Alport Syndrome Foundation
Dan Kilpatrick
Member Board Of Directors
André Weinstock
Research Director
Sharon Lagas
Co-Founder & Past President
Lisa Bonebrake
Executive Director
Samuel Greenberg
Director
Alport Syndrome Foundation Email Formats
Alport Syndrome Foundation uses 3 email formats. The most common is {first initial}{last name} (e.g., jdoe@alportsyndrome.org), used 77.8% of the time.
| Format | Example | Percentage |
|---|---|---|
{first initial}{last name} | jdoe@alportsyndrome.org | 77.8% |
{first name}{last name} | johndoe@alportsyndrome.org | 11.1% |
{last name}{last name} | doedoe@alportsyndrome.org | 11.1% |
About Alport Syndrome Foundation
Our mission is to improve the lives of those affected by Alport Syndrome through education, empowerment, advocacy, and direct investment in research. ABOUT ALPORT SYNDROME Alport Syndrome is a rare genetic kidney disease that causes a decline in kidney function that often leads to kidney failure and need for transplant, hearing loss, eye conditions, and other complications. There is no cure for Alport syndrome, and no treatment proven to prevent the development of kidney failure. Early diagnosis is essential as there are medications to delay disease progression. The majority of the Foundation's resources are directed to research to find treatments and/or a cure, including the collection of human data through sponsoring its own patient registry in the United States and other natural history data including patient bio samples. The Alport Syndrome Foundation (ASF) is the leading independent nonprofit organization in the United States serving and giving a voice to the Alport syndrome community of patients and families. For more information, visit www.alportsyndrome.org.
Alport Syndrome Foundation revenue & valuation
| Annual revenue | $448,036 |
| Revenue per employee | $33,000 |
| Estimated valuation?This valuation is estimated based on industry average for the Non-profit Organizations industry and current estimated revenues | $1,500,000 |
| Total funding | No funding |
Employees by Management Level
Total employees: 11-20
Seniority
Employees
Employees by Department
Alport Syndrome Foundation has 1 employees across 1 departments.
Departments
Number of employees
Funding Data
Alport Syndrome Foundation has never raised funding before.
Alport Syndrome Foundation Tech Stack
Discover the technologies and tools that power Alport Syndrome Foundation's digital infrastructure, from frameworks to analytics platforms.
Security
JavaScript libraries
JavaScript libraries
Caching
Mobile frameworks
JavaScript libraries
JavaScript libraries
Maps
JavaScript libraries
Fundraising & donations
JavaScript libraries
CDN
Germany
Spain
China
Canada
New Zealand
Frequently asked questions
4.8
40,000 users
