Beacon for Rare Diseases Email Formats

About Beacon for Rare Diseases

Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Our events and trainings give patient groups the opportunity to connect and collaborate with others across the rare disease space. By working in partnership with patient organisations and other stakeholders, we are transforming the rare patient experience. Our vision: A world in which no one faces their rare journey alone. Our mission: To build a united rare disease community with patient groups at its heart. We have seen the positive impact rare disease support groups have on their community. Through upskilling these groups, we are ushering in change and breaking isolation. We help all those who engage with us to embark on their personal rare journey with hope, confidence and guidance. Our projects connect stakeholders from around the world to unite, grow and strengthen the rare community. Our events highlight excellence within our field and prompt discussion, reflection and action. Together we are breaking the isolation felt by those living with a rare condition, uniting all rare diseases into a single unified force. Beacon, previously known as Findacure, officially launched under its new identity on 1st February 2022.

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