FSHD Society Email Formats
Philanthropic Fundraising Services • 
Massachusetts, United States • 51-100 Employees
FSHD Society Email Formats
FSHD Society uses 3 email formats. The most common is {first initial}.{last name} (e.g., j.doe@fshdsociety.org), used 50% of the time.
| Format | Example | Percentage |
|---|---|---|
{first initial}.{last name} | j.doe@fshdsociety.org | 71.4% |
{first name}.{last name} | john.doe@fshdsociety.org | 28.6% |
Key Contacts at FSHD Society
Jessica Wright
Director, National Fundraising Events
Frank Kolakowski
Member Board Of Directors And Scientific Advisory Board
Mark Stone
President & Chief Executive Officer
Ashley Ferreira
Director Of Education
Amanda Hill
Director / Senior Director Of Research
Jenny Gast
National Director, Chapter Programs Operations
Erin Saxon
Marketing Director
Anna Gilmore
Director Of Patient Engagement
Amy Bekier
Board Member And San Diego Chapter Director Fshd Society
Krista Giangregorio
Director Of Operations
Company overview
| Headquarters | Massachusetts, United States |
| Phone number | +17813016060 |
| Website | |
| NAICS | 8132 |
| SIC | 839 |
| Keywords | Advocacy, Rare Disease, Patient Education, Fundraising And Development, Medical Research Funding, Muscular Dystrophy, Clinician Education, Neuromuscular |
| Founded | 1991 |
| Employees | 51-100 |
| Socials |
About FSHD Society
The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone. Our Vision: A world free of the suffering caused by Facioscapulohumeral Muscular Dystrophy (FSHD) Our Mission: Find treatments and a cure for FSHD while empowering our families Our Strategies: - Accelerate the development of treatments and a cure for FSHD - Increase, engage, and empower our stakeholders - Aggressively leverage and expand resources to support our Mission Our Core Values: Research | Community | Urgency
Employees by Management Level
Total employees: 51-100
Seniority
Employees
Employees by Department
FSHD Society has 17 employees across 9 departments.
Departments
Number of employees
Funding Data
FSHD Society has never raised funding before.
FSHD Society Tech Stack
Discover the technologies and tools that power FSHD Society's digital infrastructure, from frameworks to analytics platforms.
Video players
WordPress plugins
JavaScript libraries
JavaScript libraries
JavaScript libraries
JavaScript libraries
UI frameworks
Analytics
WordPress plugins
JavaScript libraries
CDN
A/B Testing
Netherlands
United Kingdom
Argentina
CanadaFrequently asked questions
4.8
40,000 users
