


Jansen de Vries Syndrome (JdVS) Foundation
Non-profit Organizations • • 1-10 Employees
Company overview
| Headquarters | XX |
| Website | |
| NAICS | 813 |
| Founded | 2017 |
| Employees | 1-10 |
Key Contact at Jansen de Vries Syndrome (JdVS) Foundation
Kara Kilroy
President
About Jansen de Vries Syndrome (JdVS) Foundation
The Jansen de Vries Syndrome (JdVS) Foundation is a nonprofit, tax-exempt organization as defined in section 501(c)(3) of the Internal Revenue Code and, as such, contributions to JdVS Foundation are tax-deductible. Donations will go towards the mission of providing support and a sense of community to families touched by a JdVS diagnosis. We are focused on providing education and resources to both families and medical professionals. Our goal is to raise awareness about this rare genetic condition and unite families, researchers, and medical professionals through the facilitation of a patient registry program. Through fundraising and grant efforts, we will work to provide researchers the resources necessary to gain a better understanding of the PPM1D mutation and develop potential treatments and therapies to ultimately improve the lives of those living with this rare genetic condition.
Jansen de Vries Syndrome (JdVS) Foundation revenue & valuation
| Annual revenue | $85,555 |
| Revenue per employee | $86,000 |
| Estimated valuation?This valuation is estimated based on industry average for the Non-profit Organizations industry and current estimated revenues | $273,776 |
| Total funding | No funding |
Employees by Management Level
Total employees: 1-10
Seniority
Employees
Funding Data
Jansen de Vries Syndrome (JdVS) Foundation has never raised funding before.
Frequently asked questions
4.8
40,000 users



