Lymphangiomatosis & Gorham's Disease Alliance (LGDA) Email Formats
Philanthropic Fundraising Services • 
St Petersburg, Florida, United States • 1-10 Employees
Lymphangiomatosis & Gorham's Disease Alliance (LGDA) Email Formats
Lymphangiomatosis & Gorham's Disease Alliance (LGDA) uses 2 email formats. The most common is {first initial}.{last name} (e.g., j.doe@lgdalliance.org), used 66.7% of the time.
| Format | Example | Percentage |
|---|---|---|
{first initial}.{last name} | j.doe@lgdalliance.org | 66.7% |
{first initial}{last name} | jdoe@lgdalliance.org | 33.3% |
Key Contacts at Lymphangiomatosis & Gorham's Disease Alliance (LGDA)
Louise Murgia
Director Of Operations
Lisa Klepper
Director Of Patient Programs/Patient Registry Coordinator
Company overview
| Headquarters | 7901 4th St N, St Petersburg, Florida 33702, US |
| Website | |
| NAICS | 8132 |
| SIC | 839 |
| Keywords | Rare Diseases, Rare Disease, Vascular Anomalies, Rare Disease Research, Lymphatic System, Complex Lymphatic Anomalies, Generalized Lymphatic Anomalies, Gorham Disease, Cla Research, Central Conducting Lymphatic Anomaly, Gorham Stout Disease, Kaposiform Lymphangiomatosis, Lymphangiomatosis, Pik3Ca Gene, Lymphatic Malformations, Rare Lymphatic Diseases, Vanishing Bone Disease |
| Founded | 2007 |
| Employees | 1-10 |
| Socials |
About Lymphangiomatosis & Gorham's Disease Alliance (LGDA)
The LGDA is dedicated to improving the quality of life of patients with complex lymphatic anomalies by providing patient support and education; promoting and supporting basic science and patient-centered clinical research that will improve understanding of CLAs and establish best practices for their diagnosis and management; and advocating for public policies that benefit those living with these rare lymphatic diseases. Complex lymphatic anomalies (CLA) is an umbrella term which currently includes 4 overlapping, lymphatic-system maldevelopments resulting from somatic mutations in PIK3/mTor and RAS/MAPK signaling pathways: generalized lymphatic anomaly (GLA), kaposiform lymphangiomatosis (KLA), central conducting lymphatic anomaly (CCLA), and Gorham-Stout disease (GSD). Outdated terms for these diseases include lymphangiomatosis and lymphangiectasia.
Employees by Management Level
Total employees: 1-10
Seniority
Employees
Funding Data
Lymphangiomatosis & Gorham's Disease Alliance (LGDA) has never raised funding before.
Lymphangiomatosis & Gorham's Disease Alliance (LGDA) Tech Stack
Discover the technologies and tools that power Lymphangiomatosis & Gorham's Disease Alliance (LGDA)'s digital infrastructure, from frameworks to analytics platforms.
JavaScript libraries
Web servers
JavaScript libraries
Tag managers
Security
Miscellaneous
JavaScript libraries
JavaScript libraries
Search engines
Analytics
Spain
France
Canada
United Arab Emirates
Italy
Frequently asked questions
4.8
40,000 users
