Mathew Forbes Romer Foundation Revenue

About Mathew Forbes Romer Foundation

Join us as we celebrate the 25th Anniversary Celebration of the Mathew Forbes Romer Foundation. Inspired by the strength of a little boy, who lost his eight-year battle with Tay-Sachs disease in 2003, and the hundreds of affected children like him, The Mathew Forbes Romer Foundation (MFRF) was founded in South Florida in 1998 with a mission to promote and lead critical awareness, testing, counseling, and research initiatives that hold promise for the prevention and eventual cure of fatal children's genetic diseases of the brain. Since being launched, the Foundation has: • Co-Founded the National Research Initiative with the National Tay-Sachs and Allied Diseases Association in 2002; raised over $4M in grants, which has resulted in over 65 research projects; • Funded several projects that have led to large National Institutes of Health (NIH) grants resulting in over $20 million towards goal; • Helped establish the Tay-Sachs Gene Therapy Consortium which has led to two clinical trials with over 20 affected children • Hosted countless genetic testing and education fairs since 2003 around South Florida and reached more than 1,700 people through screening efforts; and • Funded more than 70 nursing scholarships with four academic institutions in South Florida, including Florida International University, Florida Atlantic University Colleges of Nursing, and Nova Southeastern University. *. MFRF has been the Florida Affiliate of the National Tay-Sachs and Allied Diseases Association, (NTSAD), the oldest Genetics Organization in the country since 2000. MFRF is proud of the partnerships it has established with industry, academia, medicine, science, and patient advocacy organizations across the global as we continue to strive for results and progress to benefit so many families and affected children.

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