National Organization for Rare Disorders
Non-profit Organizations • 
Danbury, Connecticut, United States • 101-200 Employees
Company overview
| Headquarters | 55 Kenosia Avenue, Danbury, CT 06810, US |
| Phone number | +16172497300 |
| Website | |
| NAICS | 813 |
| SIC | 839 |
| Keywords | Research, Online Communities, Advocacy, Patient Support, Rare Diseases, Orphan Diseases, Information For Medical Professionals, Patient Assistance, Rare Disease Information |
| Founded | 1983 |
| Employees | 101-200 |
| Socials |
Key Contacts at National Organization for Rare Disorders
Alli Ward
Director Of Membership
Jean Gallagher
Associate Director Of Business Development
Katie Kowalski
Associate Director Of Education Programs
Leah Barber
Director Of Grassroots Advocacy
Jenna Scheer
Director Of Philanthropy
Rebecca Aune
Director Of Education Programs
Janine Lewis
Director Of Research Operations
Kasey Baker
Associate Director Of Technology
Julie Manus
Director Of Development
Carolyn Sheridan
Associate Director Of State Policy
National Organization for Rare Disorders Email Formats
National Organization for Rare Disorders uses 4 email formats. The most common is {first name}{last name} (e.g., johndoe@rarediseases.org), used 51.8% of the time.
| Format | Example | Percentage |
|---|---|---|
{first name}{last name} | johndoe@rarediseases.org | 51.8% |
{first initial}{last name} | jdoe@rarediseases.org | 41.2% |
{last name}{last name} | doedoe@rarediseases.org | 5.9% |
{first initial} | j@rarediseases.org | 1.2% |
About National Organization for Rare Disorders
The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is an independent patient advocacy organization dedicated to helping individuals with rare diseases and the organizations that serve them. NORD, along with its 350+ patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient support services. NORD serves all stakeholders in the rare disease community, including patients and their families, patient organizations, researchers, medical professionals, medical students, and companies developing orphan products. NORD also works closely with many government agencies, most notably the National Institutes of Health (NIH) and the Food and Drug Administration (FDA). All NORD programs are focused on one ultimate goal: to improve the lives of individuals and families affected by rare diseases. NORD is the official U.S. sponsor of Rare Disease Day, an international observance day held on the last day of February each year. Its goals are to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. To learn more, visit rarediseases.org/rare-disease-day. To learn more, please visit the NORD website at www.rarediseases.org. You can also follow NORD on X at @RareDiseases.
National Organization for Rare Disorders revenue & valuation
| Annual revenue | $13,800,000 |
| Revenue per employee | $75,000 |
| Estimated valuation?This valuation is estimated based on industry average for the Non-profit Organizations industry and current estimated revenues | $43,900,000 |
| Total funding | No funding |
Employees by Management Level
Total employees: 101-200
Seniority
Employees
Employees by Department
National Organization for Rare Disorders has 51 employees across 13 departments.
Departments
Number of employees
Funding Data
National Organization for Rare Disorders has never raised funding before.
National Organization for Rare Disorders Tech Stack
Discover the technologies and tools that power National Organization for Rare Disorders's digital infrastructure, from frameworks to analytics platforms.
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India
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Frequently asked questions
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