#NotJustFatigue

About #NotJustFatigue

#NotJustFatigue is a 501(c)(3) nonprofit organization dedicated to raising awareness about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), advocating for individuals affected by the disease, engaging with government officials to shape policy, improving patient access for diagnosis and treatment, and securing critical funding for medical research. ME/CFS is a severely debilitating physiological illness, commonly known as “Chronic Fatigue Syndrome”, with 60+ reported symptoms that impact an estimated 3.3 million Americans (CDC)—fatigue is just one of them. Among those affected, 75% cannot attend work or school, while 25% are entirely homebound or bedbound, with a quality of life comparable to that of congestive heart failure or cancer. Despite the severity and scope of ME/CFS, there are still no FDA-approved treatments, biomarkers, or diagnostic tests—leaving patients without effective medical interventions and often facing years of misdiagnosis and inadequate care. Launched in 2024, NotJustFatigue.org is filling the void in available information on ME/CFS, educating audiences, and raising awareness for the disease. The site’s innovative format and engaging style achieved 11 Vega awards, 5 Muse Awards, 4 Titan Health Awards, 11 Communicator Awards, 4 w3 awards, 2 Shorty Audience Honoree Awards, and Webby Awards Honoree status. Elizabeth Ansell is The Founder and Executive Director of #NotJustFatigue, where she is leading the charge to drive awareness, education, and advocacy for ME/CFS after a nearly decade-long personal battle with the disease. Leveraging production experience in Television and Film, she is the creative force behind the organization’s award-winning digital content, captivating narratives, and engaging stories. By resonating with audiences, capturing attention, and raising awareness at scale, #NotJustFatigue is forging a path forward in a way that medical and political rhetoric cannot.

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