


Tatton Brown Rahman Syndrome (TBRS) Community Email Formats
Non-profit Organizations • 122 HUNNS LAKE RD, Stanfordville, United States • 1-10 Employees
Tatton Brown Rahman Syndrome (TBRS) Community Email Formats
Tatton Brown Rahman Syndrome (TBRS) Community uses 1 email format. The most common is {first initial} (e.g., j@tbrsyndrome.org), used 100% of the time.
| Format | Example | Percentage |
|---|---|---|
{first initial} | j@tbrsyndrome.org | 100% |
Key Contact at Tatton Brown Rahman Syndrome (TBRS) Community
Jill Kiernan
Executive Director
Company overview
| Headquarters | 122 HUNNS LAKE RD, Stanfordville, New York 12581, US |
| Website | |
| NAICS | 813 |
| SIC | 869 |
| Founded | 2017 |
| Employees | 1-10 |
| Socials |
About Tatton Brown Rahman Syndrome (TBRS) Community
The Tatton Brown Rahman Syndrome (TBRS) Community aims to support all families affected by TBRS and advance research toward interventions. We are committed to developing a supportive, inclusive, and collaborative network of families, clinicians, researchers, and other stakeholders. We serve the patient above all else. Our Goals are: To create a comforting, inclusive community for diagnosed individuals and their families to connect, support each other, and share information. To coordinate and support research on this newly identified, rare syndrome and identify treatments. To support research and education efforts for this newly identified, rare syndrome. To educate the greater community and raise awareness of TBRS. To manage a global patient registry for individuals diagnosed with TBRS.
Employees by Management Level
Total employees: 1-10
Seniority
Employees
Funding Data
Tatton Brown Rahman Syndrome (TBRS) Community has never raised funding before.
Tatton Brown Rahman Syndrome (TBRS) Community Tech Stack
Discover the technologies and tools that power Tatton Brown Rahman Syndrome (TBRS) Community's digital infrastructure, from frameworks to analytics platforms.
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Frequently asked questions
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