Thalassaemia International Federation (TIF) Revenue

About Thalassaemia International Federation (TIF)

Thalassaemia International Federation (TIF), a non-governmental, patient-driven umbrella organisation, established in 1986, supports the rights of people with thalassaemia, haemoglobinopathies and rare anaemias for access to quality health, social and other care through its work with over 231 national patient associations in 69 countries across the world. Founded by a small group of doctors and patients/parents who represented National Patient Associations, mainly from Cyprus, Greece, Italy, UK, and USA i.e., countries where thalassaemia had been recognized early as a genetic, hereditary disorder with huge medical, public health, social and economic repercussions if left unaddressed in terms of both effective prevention and management. Our Mission: The prioritisation of thalassaemia on national health agendas and the development and implementation of effective disease- specific control (prevention and clinical management) programmes within national healthcare systems based on universal coverage. Our Vision: To support the provision of equal access of every affected patient to high quality health, social and other care in a truly patient-centred healthcare setting. Our Work: Education | Advocacy | Collaborations/ Networking | Research | Raising Awareness Our Partners: World Health Organisation: In official relations since 1996 United Nations Economic and Social Council: In special consultative status with the since 2017 Council of Europe: Participatory status at the Conference of International Non-Governmental Organisations since 2019 European Commission: Official partners in the field of Health since 2018

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