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About Visual Snow Initiative

The Visual Snow Initiative (VSI) is a nonprofit organization that was created to establish global awareness, education, recognition, resources, treatment options, and research for Visual Snow Syndrome (VSS), a neurological condition affecting an estimated 2-3% of the global population. VSS can impact vision, hearing, cognition, sensory processing, and quality of life for individuals of all ages. Founded in 2018 by Sierra Domb, VSI was established after she experienced the onset of VSS. Sierra organized the first Visual Snow Conference, bringing together researchers and medical professionals from around the world to form a Global Research Team. This collaboration has resulted in groundbreaking research on symptomatology, pathophysiology, brain network mechanisms, neurotransmitter activity, biomarkers, and treatment strategies where none previously existed for VSS. VSI’s team has driven research efforts in 7 countries and secured ICD recognition from the World Health Organization for both Visual Snow Syndrome and Visual Snow, marking the first global scientific and medical acknowledgment of VSS. Key milestones include the creation of the first Diagnostic Criteria for VSS, the launch of a Global Directory of VSS Physicians, the production of over 300 educational videos, the development of physician-patient resources to improve care outcomes and health literacy, the establishment of the first pediatric platform for children with VSS, and advancements in awareness through multimedia initiatives. All donations to VSI support VSS research, advancing global efforts to improve diagnosis, treatment, and care, with the ultimate goal of finding a cure.

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