


Alliance to Cure Cavernous Malformation Revenue
Research Services • Charlottesville, Virginia, United States • 11-20 Employees
Alliance to Cure Cavernous Malformation revenue & valuation
| Annual revenue | $1,539,990 |
| Revenue per employee | $86,000 |
| Estimated valuation?This valuation is estimated based on industry average for the Research Services industry and current estimated revenues | $5,000,000 |
| Total funding | No funding |
Key Contacts at Alliance to Cure Cavernous Malformation
Jianbo Hu
Industry Liaison Director
Connie Lee
Founder And Ceo
Katie Garbarini
Clinical Programs Director
Dinah Winchester
Director Of Strategic Partnerships
Karen Buck
Treasurer Board Of Directors
Company overview
| Headquarters | 977 Seminole Trail, Charlottesville, Virginia 22901, US |
| Website | |
| NAICS | 5417 |
| Keywords | Research, Patient Education, Advocacy, Patient Support |
| Founded | 2002 |
| Employees | 11-20 |
| Socials |
Alliance to Cure Cavernous Malformation Email Formats
Alliance to Cure Cavernous Malformation uses 5 email formats. The most common is {first initial} (e.g., j@alliancetocure.org), used 50% of the time.
| Format | Example | Percentage |
|---|---|---|
{first initial} | j@alliancetocure.org | 50% |
{first initial}{last name} | jdoe@alliancetocure.org | 25% |
{first name} | john@alliancetocure.org | 10% |
{first name}.{last name} | john.doe@alliancetocure.org | 10% |
{first initial}.{last name} | j.doe@alliancetocure.org | 5% |
About Alliance to Cure Cavernous Malformation
Alliance to Cure Cavernous Malformation is a patient advocacy organization whose mission is to inform, support, and empower individuals affected by cavernous malformation and drive research for treatments and a cure. Cavernous angiomas, also known as cavernous malformations or cavernoma, are brain and spinal blood vessels lesions that can cause strokes and seizures when they hemorrhage. They can be inherited and are a leading cause of stroke in children and young adults. Angioma Alliance connects patients and advances research. Our unique assets are a DNA/Tissue Bank, an International Patient Registry, an annual international Scientific Meeting attended by every major cavernous angioma research laboratory in the world, a free genetic testing program, and a network of Centers of Excellence. Patients and their families offer mutual support through a one-on-one peer support program, online discussion groups, and family conferences. They receive accurate information about the illness on our website and in our literature. We sponsor the Baca Family Historical Project in the US Southwest. The aim of the program is to connect the descendants of Cristobal Baca II and his wife, who are thought to be the founders of the Common Hispanic Mutation, the cause of cerebral cavernous angiomas in a significant part of the original Hispanic community in the Southwest. The Baca Family Historical Project offers health provider education, public conferences, free genetic testing, and patient support opportunities. Angioma Alliance has spawned sister organizations in the United Kingdom, Canada, Italy, Spain, Brazil, the Philippines, and Sweden.
Employees by Management Level
Total employees: 11-20
Seniority
Employees
Employees by Department
Alliance to Cure Cavernous Malformation has 6 employees across 4 departments.
Departments
Number of employees
Funding Data
Alliance to Cure Cavernous Malformation has never raised funding before.
Alliance to Cure Cavernous Malformation Tech Stack
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