


Myotonic Dystrophy Foundation
Non-profit Organizations • Oakland, California, United States • 21-50 Employees
Company overview
| Headquarters | 663 13th St, Suite 100, Oakland, California 94612, US |
| Phone number | +14158007777 |
| Website | |
| NAICS | 813 |
| Keywords | Medical Education, Education, Grants, Support Groups, Patient Advocacy, Research Grants, Myotonic Dystrophy |
| Founded | 2007 |
| Employees | 21-50 |
| Socials |
Key Contacts at Myotonic Dystrophy Foundation
Kleed Cumming
Director Of Communications & Technology
Tanya Stevenson
Chief Executive Officer
Nadine Ann Skinner
Director Of Evaluation And Research Programs
Scarlett Chidgey
Director Of Development
Mindy Buchanan
Director Of Programs
Myotonic Dystrophy Foundation Email Formats
Myotonic Dystrophy Foundation uses 2 email formats. The most common is {first initial}.{last name} (e.g., j.doe@myotonic.org), used 92.9% of the time.
| Format | Example | Percentage |
|---|---|---|
{first initial}.{last name} | j.doe@myotonic.org | 92.9% |
{first name}.{last name} | john.doe@myotonic.org | 7.1% |
About Myotonic Dystrophy Foundation
We envision a world with treatments and a cure for myotonic dystrophy (DM). Our mission is Community, Care, and a Cure. We created the Myotonic Dystrophy Foundation (MDF) to enhance the quality of life of people living with myotonic dystrophy (DM) and to drive research focused on treatments and a cure. DM is an inherited disorder that can appear at any age and manifests differently in every person. MDF is the leading global advocate helping patients and families navigate the DM disease process, and is often the first resource contacted by newly-diagnosed patients, their families, their social workers and their physicians around the world. For many international patients, MDF is often the only resources and support they are able to locate. Currently tens of thousands of people living with myotonic dystrophy, their families & friends make up the MDF community. Based in Oakland, California, MDF partners with, and complements the work of, the National Institutes of Health (NIH), the Centers for Disease Control and Prevention (CDC), and other governmental, academic, and philanthropic agencies.
Myotonic Dystrophy Foundation revenue & valuation
| Annual revenue | $1,885,516 |
| Revenue per employee | $86,000 |
| Estimated valuation?This valuation is estimated based on industry average for the Non-profit Organizations industry and current estimated revenues | $6,100,000 |
| Total funding | No funding |
Employees by Management Level
Total employees: 21-50
Seniority
Employees
Employees by Department
Myotonic Dystrophy Foundation has 2 employees across 2 departments.
Departments
Number of employees
Funding Data
Myotonic Dystrophy Foundation has never raised funding before.
Myotonic Dystrophy Foundation Tech Stack
Discover the technologies and tools that power Myotonic Dystrophy Foundation's digital infrastructure, from frameworks to analytics platforms.
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Frequently asked questions
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